What We Love

Here at Mama Bear for Rare we like to promote and uplift other companies that are doing good in the world. 

Hailey and Drew playing on the floor

Companies & Organizations We Support

We consider these to be the best of the best supporters in the rare disease space.

Jordan's Guardian Angels

Leading organization on Jordan’s Syndrome that promotes awareness and research on the PPP2R5D gene mutation.

Epilepsy Foundation

Epilepsy affects 3.4 million people nationwide. The Epilepsy Foundation focuses on training in seizure recognition and first aid, fundraising for research, and advocating and educating.

Patient Worthy

An online publication that provides relevant information to rare disease patients, caregivers, and advocates.

2 Dogs and a Laptop

Helping mission-driven individuals and small businesses grow their communities by designing and developing purposeful websites.

Extra Lucky Moms

Creating a comunity for moms of children with special needs. Being a mom or parent of a child with special needs can be lonely. Join this inclusive community to be inspired, fulfilled, laugh, and learn.

Once Upon a Gene

Advocate creating a community for parents of children with rare diseases through her podcast.

Robin Edelstein

Special educator providing direct instruction for children who learn atypically.


Super soft, sustainable clothing for every child in every color.


Selling skin-friendly jewelry for people who suffer from a nickel allergy.

Hailey and Noah doing tummy time

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