baby girl with jordan's syndrome and young boy

About Mama Bear

About Mama Bear

Hey all! I am Michelle- just your average Mama trying to make the world a more inclusive place by sharing stories about my experiences as a mother of two children: one who is “neurotypical” and one who is “neurodiverse.”

Let’s work together to raise awareness for my daughter and her friends who have been diagnosed with a rare genetic syndrome called Jordan’s Syndrome. Jordan’s Syndrome affects about 160 individuals worldwide. Through ongoing research, treatment is just a few years away. The intent for a cure is in the near future! Please share this journey with us as we learn more about our child, others living their lives with children who have been diagnosed with rare diseases and illnesses, and other peoples’ journeys. Together we will work to make this world a happier and more accepting place!


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“We are Rare”

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