May 2021

hands in a heart

It Is

Being a parent to a child with special needs is a lot of things all rolled into one. It is the missing major milestones that makes you feel a little heartbroken. It is celebrating the small milestones and feeling such pride and joy when they achieve it because you know how much work it took …

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man in black long sleeved shirt and woman in black dress

Mama’s Day

When Hailey was first diagnosed, I was reaching at straws trying to find one that I could hold onto. So little information existed about Jordan’s Syndrome, but thankfully,  my extended global family was just a click away on a Facebook group. I requested to join the night that we received the news about her. When I …

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