Check out my latest articles/stories on podcasts published on different media outlets- discover the challenges and triumphs of reaching, understanding, and advocating for a rare diagnosis!!
Special Needs on the Table with Michelle Mama Bear For Rare
Jul 11, 2022 – Special Needs On The Table with hosts Alyssa Apostolopolous and Yomi Karade
Click here for my article in Rare Revolution Magazine
Read more about the journey, the community, and the strength it takes being a “Rare” parent
Once Upon A Gene Podcast: My story
Please visit this website and check out my podcast that focuses on the Netflix Show Special. Also note, Morganoff is my maiden name, but it is still me! Oops, I should update my name in all my emails- after all, it has been 8 years!
https://linktr.ee/Mamabearforrare
Links to my many sources all in one!
Please visit my published article that illustrates the road to the Jordan’s Syndrome diagnosis. Part 2 can be found in the same article!